Today was the big day... my appointment with my Hematologist. He was suppose to have the answer as to why my blood counts are not stable. He failed my test and didn't have a magic answer. He did order a crap load of blood tests and scheduled a follow up appointment for August 18th. Basically, he thinks my blood cells will recover as my body gets used to all the anti-rejection drugs and I just need to keep giving myself shots of Neupogen to help boost the bone marrow. He will discuss the need for a bone marrow biopsy during our next visit but he doesn't think that will necessarily tell him anything. Not sure what I was expecting but I was hoping for a quick fix. I am sick of waiting for my body to recover, we gave it a new liver so come on... what else do you want?? I want to get on with my life and stop these damn injections that make my bones hurt and my muscles spasm. My Doctor isn't keen on me returning to work while still on Neupogen injections and returning to work is my last hurdle to validate I will live a normal life. It's like a double edge sword.... I know I need to have patience and let my body recover but it's hard when overall I feel good and want to rejoin the traffic on Sunrise!
I did get some good news during my visit, my ANC count went from 500 yesterday to 1200 today so bubble life was less than 24 hours! Now I can use my Old Navy Groupon that expires on Saturday..... Priorities people!!
PS... Please send prayers to the patients that were in the waiting room of my Hematologist who is also an Oncologist. I was saddened to see some very sick people and hope they kick some Cancer ass. Makes my situation seem easy.
Yes, recovering is an incubator for patience. Sorry, the Doc didn't have more answers for you...and you have to have more discomfort from shots...Your blood count improvement must have been that great barbecue :-) Sue
ReplyDeleteLove you much. So glad bubble life was a short one this time around. Soon no more bubble life. Yes, our prayers to those in the waiting room today at your doctors appt.
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Hi Natasha, I just got out of the hospital two weeks ago with a new liver. So far, so good. I really appreciate you sharing your experiences. It sounds like you have a positive outlook no matter what the challenge and I believe this serves our health well. I'm reading through your blog, checking out your med list, and realizing I'm not alone in dealing with this. We all have so much in common. Keep doing what you're doing! Thank you.
ReplyDeleteI have NEVER had any patience either, so I have no good advice on that one! LOL Waiting simply sucks. I guess it is just a matter of looking at how we USE that TIME. I think that is the key. Try to focus on something positive, like your shopping trip. ;) Glad bubble life was short. I ditto your comments about those others who have experiences worse than we do. My own struggle seems miniscule compared to yours. We must just always remember to pray for others, because so many are praying for us. Sending my cyber hugs your way.
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