Well that was a FUN weekend! [Insert Sarcasm]

I can pretty much bet that your weekend was better than mine. My fun filled weekend started out on Thursday when I woke up with a bad sore throat and a temperature of 100.9. I called the on-call Dr and he wanted me to come down to SF for a clinic visit and labs so off to SF we went. My WBC and ANC counts were extremely low from the CMV treatment (Valcyte) and since I had a fever, they sent me home with antibiotics. I thought I would start feeling better with antibiotics in my system but damn, I was wrong. (I have been wrong a lot lately...have you noticed that?) I woke up Friday morning with my throat hurting even worse and a higher fever of 101.7. I called my transplant nurse and she talked to my main Hepatologist, DR. Bzowej who wanted to admit me so off to SF we went again.

After a shit load of tests, we still don't know what I caught but let's just hope I never catch that again. It was the worst pain of my life and hurt worse then the transplant. I couldn't swallow and my right tonsil was swollen it hurt to talk. They were giving me morphine for the pain and that barely even helped. (Bet you can't say you have ever gotten morphine for a sore throat!) They treated me with the "BIG GUN" antibiotics and on Saturday night, my fever finally broke. Since I broke my own personal record of lowest ANC (ANC is part of your WBC) of 33 VS the normal range of 1500-4000 they discharged me on Sunday since the risk of catching other germs was too high.

An Infectious Disease Specialist was called in to review my case and has been added to my list of Dr.'s who will be involved in my recovery. She did make some adjustments to my medicine and took me off the CMV treatment and my ANC counts already jumped from 33 to 2000. They also took me off CellCept- an anti-rejection drug but Dr. Bzowej pulled rank and overrode that decision since she wants to protect my liver. I trust Dr. Bzowej more than any other Dr. so trust that choice. I can handle a sore throat but not ready for another episode of liver failure since I am really enjoying my white eyes!

Thursday will be an eventful day. We head back to SF for 3 appointments- Hematologist, Infectious Disease Specialist and a visit at liver clinic. Hope fully we can find time to head to Blue Bottle Coffee, my newest addiction. I feel good, still recovering from the crazy weekend but my throat no longer hurts and no fever for four days!! The BEST news was my liver tests remained perfect. One Dr. said my liver is probably better than his!

Again, THANK you for the well wishes and support. You truly help keep me going!

Some pictures of my FUN weekend for your enjoyment!

My "BIG GUN" antibiotics

Always a great view

My view. Reminder to always have toes painted...makes the view so much more pleasant!