- Returning to work! I know you are probably sick of this topic and thinking to yourself that I need to enjoy the time off but I am ready to resume my normal life. Everyone keeps telling me I will have a normal life and without me back at work, my life is not normal. I also was never the type of person to call in sick so being off of work so long has been hard. The good news is that she is confident I will be returning back to work but the bad news is that she wants me to wait until January 15th. My WBC is still not stable enough and she wants some more time to be able to tweak my medicine and neupogen shots with the ability of being in my bubble if needed. My WBC counts have been high these last two weeks so I am not needing daily injections so she is hoping my body is finally getting used to the medicine. She confirmed that my body is difficult but we already knew that! Although I was hoping I would get to go back sooner, I never have had the Holiday season off so will enjoy it while I can. I was so sick last Christmas so I am excited to celebrate this year!
- My narrowing artery. I had an ultrasound to check on my two arteries that narrowed after my transplant and GREAT news... the aspirin therapy is working and the ultrasound showed a normal blood flow to my liver!! That means they will not have to do an additional surgery to insert a shunt.
- Dentist and vaccines. I have finally been cleared to go to the Dentist and get both my flu shot and pneumonia vaccine. My teeth are so happy to get cleaned and I also need two crowns. I needed the crowns before I got sick so hopefully won't need additional work since I waited so long.
- Prednisone. She is taking me off steroids!! Prednisone is an anti-rejection drug and she is tapering me off over the next eight weeks. I hope this will decrease my cravings for dessert!
- Hernia. I may have a hernia near my incision site so she ordered a CT scan to determine if surgery will be needed to fix. I will keep you updated on the results
Wednesday, September 28, 2011
Clinic Visit
Yesterday I had a clinic visit with my favorite and main transplant physician, Dr. Bzowej. I haven't seen her since June so was excited for the visit. Even though she is in constant contact with my transplant nurse regarding my care it is always nice to have an appointment dedicated to my list of questions. The mains topics we discussed were:
Wednesday, September 14, 2011
The Power of Two
On Saturday I went to San Francisco to attend the premiere of a documentary- The Power Of Two. “The Power Of Two” is a documentary film that tells the story of twins who received double lung transplants after suffering a life long battle with cystic fibrosis. It inspires action around organ donation and transplantation, and awareness of cystic fibrosis (CF) and other chronic illnesses. You can watch the trailer HERE.
I was able to relate to some but not all of the movie. Most organ transplants are a result of a chronic life long illness so once the transplant is done, a new wonderful world opens up that allows the person to do things they never were able to do before. My story is different since I never had a chronic illness and was sick for only one month prior to the transplant. Regardless of our stories being different, the movie was inspiring and I learned a lot about CF. Although my life is now filled with health issues, I am lucky that my first 30 years of life were healthy. The movie also highlighted the twins attending the Transplant Games, Olympics for transplant recipients and donors which has motivated me to start training for the 2012 games! What sport you may be asking......BOWLING!!
Overall, I am feeling good! My white blood count has remained stable from my daily neupogen injections and I only need to do labs weekly VS twice weekly. I had an ultrasound done to check my artery and to see if the narrowing had gotten worse but since they haven't admitted me, I assume all is well! My liver counts have continued to remain perfect and I view every day as a gift from my donor.
I was able to relate to some but not all of the movie. Most organ transplants are a result of a chronic life long illness so once the transplant is done, a new wonderful world opens up that allows the person to do things they never were able to do before. My story is different since I never had a chronic illness and was sick for only one month prior to the transplant. Regardless of our stories being different, the movie was inspiring and I learned a lot about CF. Although my life is now filled with health issues, I am lucky that my first 30 years of life were healthy. The movie also highlighted the twins attending the Transplant Games, Olympics for transplant recipients and donors which has motivated me to start training for the 2012 games! What sport you may be asking......BOWLING!!
Overall, I am feeling good! My white blood count has remained stable from my daily neupogen injections and I only need to do labs weekly VS twice weekly. I had an ultrasound done to check my artery and to see if the narrowing had gotten worse but since they haven't admitted me, I assume all is well! My liver counts have continued to remain perfect and I view every day as a gift from my donor.
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