On Saturday I went to San Francisco to attend the premiere of a documentary- The Power Of Two. “The Power Of Two” is a documentary film that tells the story of twins who received double lung transplants after suffering a life long battle with cystic fibrosis. It inspires action around organ donation and transplantation, and awareness of cystic fibrosis (CF) and other chronic illnesses. You can watch the trailer HERE.
I was able to relate to some but not all of the movie. Most organ transplants are a result of a chronic life long illness so once the transplant is done, a new wonderful world opens up that allows the person to do things they never were able to do before. My story is different since I never had a chronic illness and was sick for only one month prior to the transplant. Regardless of our stories being different, the movie was inspiring and I learned a lot about CF. Although my life is now filled with health issues, I am lucky that my first 30 years of life were healthy. The movie also highlighted the twins attending the Transplant Games, Olympics for transplant recipients and donors which has motivated me to start training for the 2012 games! What sport you may be asking......BOWLING!!
Overall, I am feeling good! My white blood count has remained stable from my daily neupogen injections and I only need to do labs weekly VS twice weekly. I had an ultrasound done to check my artery and to see if the narrowing had gotten worse but since they haven't admitted me, I assume all is well! My liver counts have continued to remain perfect and I view every day as a gift from my donor.
Yes, your first 30 years were very healthy and the next 30 plus years will also be healthy in a very much different way though. You are strong and a fighter which will get you through this new way of life. I believe your donor was also strong as your new liver is doing great. Thank you donor and family, as I think of you every day for giving my daughter a second chance.
ReplyDeleteLove you much.
Mom